A word from Marie…
My good friend and fellow writer, Scott Finley, works for the Alzheimer’s Association of Texas. Many of us are caregivers for family members with Alzheimer’s or other dementia, so I asked Scott to share practical guidance for keeping loved ones safe while sheltering in place. His suggestions are practical for anyone providing care during this difficult period, and I hope you find them helpful.
Caregiving while sheltering in place brings additional challenges. I especially sympathize with those who cannot visit loved ones in nursing homes, hospitals, or other residential settings. When possible, work with care staff to arrange regular phone calls or video visits to maintain connection. Physical separation may be necessary for everyone’s safety, but technology can help reduce anxiety and loneliness. I will continue updating my blog with tips and resources for caregivers during this time.
If you are caring for someone with Alzheimer’s while sheltering in place, the following recommendations from the Alzheimer’s Association can help you manage daily needs and reduce risk.
First, help people living with Alzheimer’s practice safe hygiene
People with Alzheimer’s or other dementias often forget essential hygiene steps. Caregivers should proactively support and reinforce safe hygiene routines.
- Post clear reminders in bathrooms and other key areas encouraging hand washing with soap for at least 20 seconds.
- Demonstrate hand-washing slowly and visibly so the person can imitate the steps.
- When hand-washing is not feasible, use an alcohol-based hand sanitizer with at least 60% alcohol as a practical alternative.
It’s equally important for caregivers to protect their own health. Follow recommended public health guidelines to reduce infection risk.
- Avoid close contact with people who appear ill.
- Avoid touching your face—especially your eyes, nose, and mouth.
- Stay home and limit outside interactions when you are sick; work from home if you can.
- Cover coughs or sneezes with a tissue and discard it promptly, then wash hands.
- Clean and disinfect frequently touched surfaces and objects regularly with household cleaners.
- Wash hands often with soap and water for at least 20 seconds—particularly after restroom use, before eating, and after coughing, sneezing, or blowing your nose.
If your family member lives in a residential, assisted living, or nursing home setting, do not visit if you have any symptoms of illness.
Monitor sudden or sustained changes in behavior
People with Alzheimer’s may be unable to describe how they feel or to report early symptoms of illness. Caregivers should watch carefully for changes in behavior, mood, or function that could indicate discomfort or worsening health.
Act quickly when you notice sustained or sudden changes such as increased confusion, withdrawal, agitation, loss of appetite, fever, cough, or difficulty breathing. These signs may not always indicate a serious infection, but timely assessment by a medical professional is important. Even nonverbal cues—changes in sleep patterns, body language, or personal care—can signal problems that need attention.
Stay calm and create a nurturing environment
The stress of a public health emergency increases anxiety for everyone, and people living with dementia often pick up on the emotional tone around them. Maintain a calm, reassuring presence to help reduce fear and agitation. Simple routines, predictable schedules, soothing activities, and a quiet environment can provide comfort and stability.
If home health aides or caregivers wear masks for protection, explain in a simple, reassuring way why masks are used so the person feels less alarmed. Use clear, gentle language and familiar gestures to communicate changes in care routines.
Anticipate changes in care and make contingency plans
Care and support services may change or become less available during a crisis. Adult day programs may temporarily close, and in-home services may be reduced. Plan ahead for potential gaps in care by discussing backup options with family, friends, and neighbors.
Create a short-term contingency plan that names alternate caregivers, outlines essential tasks, and lists important medical information. Consider which family members or trusted friends can assist with errands, caregiving tasks, or medication pickup if the primary caregiver becomes ill. Proactive planning reduces stress and ensures continuity of care.
Keep prescriptions refilled and organized
To limit trips to the pharmacy, ask your pharmacist or doctor about extending prescription fills when possible. Maintain an organized list of current medications, dosages, and prescribing providers. Arrange for delivery or curbside pickup if those services are available in your area.
For additional information and support related to Alzheimer’s, caregiving, and infection prevention, contact the Alzheimer’s Association helpline available 24/7 for guidance and resources.
The Alzheimer’s Association is committed to advancing research, improving care, and supporting caregivers and families affected by Alzheimer’s and other dementias. Their work focuses on risk reduction, early detection, and maximizing quality of life for people living with dementia.
Scott Finley is Media Relations Manager for the Alzheimer’s Association in Texas. He can be reached by email at [email protected] for media or information inquiries.
